This Friday (22nd September) is Jeans For Genes Day and Blue Stream Academy employees will be overdoing it in denim to raise money and awareness.
1 in 25 children in the UK are born with a genetic disorder – that amounts to more than 30,000 babies born each year. There are between 4,000 and 6,000 diagnosed genetic disorders and whilst some genetic disorders are apparent at birth while others are diagnosed at different stages throughout childhood, and sometimes into adulthood.
We all inherit a range of talents, skills and personality traits through our genes – they’re part of what makes us who we are. But half a million children in the UK face the daily challenges of a genetic disorder. By pulling on a pair of jeans, we will be helping to fund the vital care and support services that transform their lives.
Jeans For Genes Day invites people to leave their suits and uniforms at home and wear their jeans to work or school in return for a donation which will help change the lives of children across the UK. Jeans for Genes Day provides vital funding for the care and support of children with genetic disorders.
Every penny you give helps transform the lives of children affected by genetic disorders; your donations will fund the care and support children, and their families need today.
- £10 will pay for 60 minutes of specialist telephone advice for parents caring for a child with severe neurological genetic conditions.
- £50 will pay for a mother to attend a support day, giving her the help she needs to care for an extremely rare and profoundly disabling genetic condition.
- £100 will help fund an educational booklet, helping teachers to maximise opportunities available to children with inherited learning disabilities.
- £350 will pay for a child with a genetic disorder to spend a weekend away with other children like them, supported by trained medical staff.
- £1,000 will help fund a film for teenagers with a life limiting condition, helping them to come to terms with, and encouraging them to begin to take responsibility for, their condition.
- £1,300 will give a child who has lost the ability to speak access to a Tobii Eye Gaze machine, so that they can communicate with their eyes.
- £2,000 will pay for a specialist nurse to support families affected by genetic disorders.
For further information and/or to order a free fundraising kit please visit the Jeans for Genes website.